Smith-Kingsmore Syndrome Blog

Blogs on this site are written by Kristen, a mom in the US. After 15 years of questions and no answers, her son Jack finally got a diagnosis of Smith-Kingsmore syndrome. She writes this blog to help special needs families know they are not alone.

Please also check out Patsy’s blog. Patsy is a mom living in the UK. Her son Archie was also diagnosed with Smith-Kingsmore syndrome after years of not knowing. Patsy started sharing about their journey back in 2011, and writes about their struggles and triumphs.

Holidazed and Confused

We are no longer an agrarian society. What’s up with the extended school breaks? 4 strategies to maintain sanity over the holidays. “Only 5 more days of school until winter break!” The old lady...

Live your life forward by working backwards

How to live a meaningful and authentic existence when you don’t know where to start. I LOVE documentaries. Especially “people overcoming adversity in nature”-type ones. From ultra-marathons through deserts to mountain climbing without safety harnesses, you...

The trouble with “Welcome to Holland”

I feel conflicted about “Welcome to Holland.” It’s an essay I’ve been gifted a time or two over the years by well-intentioned organizations. Depending on the day, I love or despise the work. “Welcome...

Love is a verb

Love does what needs to be done even when your mind and body recoil. Clutching my soggy tissues in a death grip, I couldn’t stop bawling. I was perched on the edge of a...

Confessions of a (not so) Tiger Mother

Tenacious practice, practice, practice is crucial for excellence; rote repetition is underrated in America. – Amy Chua Ever read “Battle Hymn of the Tiger Mother”? This controversial memoir by Amy Chua details her strict...

The Secret Freedom Of A Special Needs Mom

Confessions of a former approval seeker Years ago, I was a people-pleasing rock star. The minute you required something of me, I delivered. I fed on your approval and validation. Whether it was getting...