Category: Articles/In the News
Blue Signal Gives Back
Blue Signal gave back (again)! Ryan Walsh won a whopping $3,986.50 to donate to the Smith-Kingsmore Syndrome Foundation on his behalf – all thanks to the combined efforts of the Blue...
New SKS Research Published!
We are so incredibly thankful for researchers who partner with the Smith-Kingsmore Syndrome Foundation and SKS families around the world to advance the understanding of SKS and get us closer...
With One Phone Call, Answers to a Genetic Mystery
Check out the University of Florida Foundation article by Liesl O’Dell on SKS and UF’s research team! Read a story
Second Family Conference
October 23 and 24, 2021: We met virtually for the 2nd Smith-Kingsmore Syndrome Family Conference. Cincinnati Children’s Hospital Medical Center (CCHMC) again hosted this event together with the Smith-Kingsmore Syndrome...
SKSF Part of Rare As One Network
It is official! The SKS Foundation is now part of the Chan Zuckerberg Initiative #RareAsOne Network – a group of 50 patient-led organizations that are strengthening rare disease communities, improving...
February 2022 Newsletter
Rare Disease Day is Feb 28, 2022! In the newsletter we provide updates on the latest research and how to get involved in the current studies. We also share details...
Rare Disease Day News
SKS was in the news for Rare Disease Day! SKSF Board member Matt Walsh and his family, and SKSF President Kristen Groseclose spoke with a reporter in Arizona. They shared...
$2.4M NIH Grant for SKS Research
We are beyond excited to announce University of Florida, Dr. Andrew Liu and research team have been awarded a $2.4 million NIH grant for SKS research! Our community and supporters...
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