You Are Not Alone.

Receiving a diagnosis of Smith-Kingsmore syndrome can be an overwhelming experience. There are many uncertainties that we have to deal with, today and in the future. But you’re never alone. The Smith-Kingsmore Syndrome Foundation and our broader community are here to support you.

Here are some steps to get you started on this journey with us.

• Download our Family and Medical Provider Guide to Smith-Kingsmore Syndrome
• Join our private Smith-Kingsmore Syndrome Family & Friends Group
• Sign up for our newsletter
• Join our patient registry
• Explore our website for information about SKS research, community events and fundraising (how we make the research happen!)
• Follow us on socials
  • Twitter: @smithkingsmore
  • Instagram: @smithkingsmorefoundation
  • LinkedIn: Smith-Kingsmore Syndrome Foundation | LinkedIn