Family & Medical Provider Guide

Life with a rare disease like Smith-Kingsmore syndrome involves a LOT of explaining – to family, to teachers, to doctors! Because very few people have heard of SKS, it is up to the diagnosed individual or their caregivers to educate people around them about SKS and how it impacts them.

To help our community, the Smith-Kingsmore Syndrome Foundation, in collaboration with the SKS Medical and Scientific Advisory team, have put together a guide that can be downloaded and shared – “The Smith-Kingsmore Syndrome Guide for Family and Medical Providers”. The guide is intended for informational or educational purposes only, and does not substitute professional medical advice.

We hope you find this a useful tool to use with your broader community.

Guide now available in Romanian.