Category: Blog

Caught between two worlds: what is “normal”

January 26, 2024

5 years ago Jack stopped breathing. He had a grand mal seizure in his bedroom, just after dinner. My other child and I had heard a loud thud and then…silence....

Continue reading>>

The Secret Freedom Of A Special Needs Mom

January 26, 2024

Years ago, I was a people-pleasing rock star. The minute you required something of me, I delivered. I fed on your approval and validation. Whether it was getting good grades,...

Continue reading>>

The Elf On The Shelf Is The Devil’s Plaything

January 26, 2024

This thought may be unpopular, but I’m gonna challenge that sacred cow, the third rail of holiday festivities: The Elf on the Shelf. To be clear: I HATE The Elf on...

Continue reading>>

Confessions of a (not so) Tiger Mother

January 26, 2024

Ever read “Battle Hymn of the Tiger Mother”? This controversial memoir by Amy Chua details her strict parenting philosophy. Her goal? Unambiguous success for her daughters. No other outcome imaginable. Anything...

Continue reading>>

Love is a verb

January 26, 2024

Clutching my soggy tissues in a death grip, I couldn’t stop bawling. I was perched on the edge of a soft chair in the dimmed sanctuary of Dr. G’s office....

Continue reading>>

Live your life forward by working backwards

January 26, 2024

I LOVE documentaries. Especially “people overcoming adversity in nature”-type ones. From ultra-marathons through deserts to mountain climbing without safety harnesses, you name it, I’ve watched it.

Continue reading>>

Holidazed and Confused

January 26, 2024

“Only 5 more days of school until winter break!” The old lady crossing guard with the ruddy weathered face and jaunty Santa hat chirped this greeting to me years ago,...

Continue reading>>

Cut me a piece of that humble pie…

January 26, 2024

A few weeks ago, I braved the UPS store to ship back a duplicate Christmas gift for my husband Mike. I had my developmentally disabled teenager Jack with me–it was...

Continue reading>>

Savor the bite-sized victories and joys

January 26, 2024

“Tell them no. They should get the information themselves.” So said Dr. G, my long-ago therapist. I’d been venting about my latest drama in the world of special needs parenting.

Continue reading>>

To the parent trapped in a horrible day

January 26, 2024

I see you, my fellow caregiver. You’re trying and failing to hold it together because today is bad. Like really bad. Like so bad you don’t know how to get...

Continue reading>>