Financials

At Smith-Kingsmore Syndrome Foundation, we want our donors to have the highest level of confidence when supporting our work. We are committed to transparency and making it easy to access information on how we are carrying out our mission. If you have any questions at all, please don’t hesitate to reach out to the Foundation at SKSFoundation@smithkingsmore.org.

The Smith-Kingsmore Syndrome Foundation was established in the state of Ohio in August 2019 and designated a tax-exempt public charity in the United States by the Internal Revenue Service under Section 501(c)(3), effective April 2020.

View our IRS Letter of Determination for 501(c)(3) 

Smith-Kingsmore Syndrome Foundation’s employer identification number is 84-2913037.

Our Ohio State Registration number is 4373426

Our Financial Transparency
Our Charitable Ratings:

Smith-Kingsmore Syndrome Foundation is proud to be a top-rated charity, reviewed and held accountable by independent third-party organizations:

The Smith-Kingsmore Syndrome Foundation is the proud recipient of a Chan-Zuckerberg Initiative “Rare As One” grant, which provides funding, tools and capacity-building support and training for patient-led organizations that are working to improve the lives of people with rare diseases.

Rare As One Project – Chan Zuckerberg Initiative