Smith-Kingsmore Syndrome Research Strategy

Accelerating progress towards better treatment and a cure

The Smith-Kingsmore Syndrome Foundation’s Research Strategy sets out how we will focus our efforts to improve treatment options for people living with SKS today, while building the scientific foundation for more precise treatments and, ultimately, a cure.

Our strategy focuses on three priorities:

Improve treatment options now
Accelerate research and clinical understanding that can lead to better treatment decisions for people with SKS.

Build the science for precision treatments
Develop the knowledge, models, data and tools needed to understand SKS biology and enable targeted therapies.

Grow a connected global SKS community
Bring together families, clinicians and researchers to accelerate discovery and sustain progress over the long term.

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